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Andrew & Esther Talk About Advocacy, ASCO, and Humanitarian Efforts

April 5, 2022
 Andrew and Esther Schorr of Patient Power

There’s great need among cancer patients to self-advocate for the right and best treatment, and there are great organizations out there to support you in this effort. We share activities we’ve gotten involved with to this end, and chat about ASCO as well as efforts to support Ukrainian refugees. Esther’s involved in planning an advocate conference called Escape to THRIVE where advocates nationally (US) gather to learn from each other. We are both headed to ASCO in June – the largest annual gathering of the worldwide oncology community, to meet with peers and medical experts about progress in cancer treatments. Personally, we are connected with humanitarian efforts in Poland to do what we can to aid refugees fleeing Russia during the war that is impacting so many people and the world. We do this all with our hearts – connected with all of you and others dealing with life crisis and difficult journeys.

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Andrew and Esther Schorr of Patient Power
  • Andrew and Esther Schorr of Patient Power

  • Andrew Schorr, a medical journalist, has been living with myelofibrosis since 2011. His diagnosis followed being hospitalized for two blood clots in his legs. Andrew, working with his wife of 36 years, Esther, has been a patient education pioneer since 1984 and became a patient himself in 1996 when he was diagnosed with chronic lymphocytic leukemia. A clinical trial in 2000 led to a long leukemia remission and he has been treated for myelofibrosis since 2012. He leads a full life.

    Andrew and Esther founded Patient Power many years ago which produces and distributes videos, podcasts, and articles with doctors and patients in several specific cancers, including the two Andrew is living with.

    Follow Andrew on Twitter and Facebook.

    Esther Schorr is a skilled global project manager, and has worked with her spouse, Andrew, on patient and family education projects for more than 30 years. She has supported him in his cancer journey since his initial diagnosis in 1996. Esther is passionate about empowering "care partners" and is a strong believer that education leads to empowerment and better care. Esther focuses her work on building collaborative relationships with other patient-focused organizations.

    Follow Esther on Twitter and Facebook

    Andrew and Esther's Patient Power produces content on the following blood cancers: Acute Lymphoblastic Leukemia (ALL), Acute Myeloid Leukemia, Chronic Lymphocytic Leukemia (CLL/SLL), Chronic Myelogenous Leukemia, Hodgkin lymphoma, Mantle Cell Lymphoma, Multiple Myeloma, Myeloproliferative Neoplasms, Non-Hodgkin Lymphoma, and Waldenstrom Macroglobulinemia

    Andrew and Esther Schorr