Paid Research Opportunity for UK residents on Social Isolation During the Covid-19 Pandemic
From our friends at Evolve Fieldwork, contact person is Gretel Urdambidelus Rodriguez. The purpose of this research is to better understand your opini…
COVID19
Covid Realities – was it real??
Was it real? Three years on after the beginning of the pandemic and I am still living in what seems to be a surreal nightmare. I seem to have lost thr…
Ask the Doc 2023 event with Doctor Mustafa Allergy/Immunology from Rochester Regional Health System
We were blessed to have Dr. Shahzad Mustafa again from Rochester Regional Head of Allergy and Immunology in Rochester, NY with us on January 21st. Alw…
Evusheld betrayal – UK Govt still gaslighting the immune suppressed rather than protecting us
This morning the BBC are reporting that the Department of Health has ruled out "for now" buying doses of the only preventative antibody treatment agai…
Blood Cancer Approved Summer Activities
As summer is here now and for some of us, this is the only time we can get out and enjoy better weather, I have compiled a list of safe activities for…
VIDEO: Learning to LIVE safely with COVID – including an outdoor wedding
Catch up with Andrew Schorr's latest videos on how he and Esther are managing to enjoy life whilst still being cautious because of his two blood cance…
Could YOU help explain the plight of blood cancer patients feeling unsafe and unable to get the treatments they want?
We want to hear your stories. Sadly we are even hearing of people who tried and failed to get preventative COVID19 treatments, or the antivirals for w…
iNews reports on Astra Zeneca’s criticism of the UK government for not negotiating to buy Evusheld
The staggering news that the UK government has not even bothered to open negotiations with Astra Zeneca about Evusheld is covered in the iNews this mo…
Astra Zeneca blasts UK government’s “commercially sensitive” Evusheld excuses as 1 in 13 Brits have COVID19
Ministers continue make excuses on a regular basis that they cannot discuss any negotiations that may or may not be going on with the maker of EVUSHEL…
Sign our petition to fund Evusheld for blood cancer and other causes of immune compromise. These preventative antibodies massively reduce the risk of Covid19 hospitalisations and death
We were elated at the approval of a treatment which provides a similar preventative shield as vaccines for those who don't make their own antibodies. …
Reflections of Safety and Fear
This last week has been the most traumatic since forever. My husband had a cardiac ablation. He developed a pseudo aneurysm of the femoral artery whic…
Astra Zeneca’s Evusheld preventative COVID19 Monoclonal Antibody injection licensed in UK. But so far the NHS refuses to pay for it!
Finally many months after the USA, the UK regulator has approved this product designed for patients like me with blood cancer and other causes of immu…
UK NHS sends out another batch of Covid19 treatment emails
Many of us have been waiting MONTHS for this and have sent countless emails informing everyone we can think of that we were somehow left off the list …
Had Evusheld? You need a top up dose asap to increase protection against new variants
The FDA has a sensible approach about monoclonal antibodies. There is a recognition that if you can get to a plasma level of antibodies which in a lab…
Thrown to the wolves by the UK: the end of all COVID protections and no more tests except for those on the new at greatest risk list #DoInotmatter #BloodCancer #immunocompromised
Today I feel betrayed. I understand the desire to save money and get back to normal life. But we, the 500,000 who are immune compromised due to blood …
On the end of COVID Restrictions: the CLL patient’s dilemma by Raymond Vles, CLL Canada Board Chair
With the steady progress of COVID vaccination, restrictions are being lifted and rules are being eased; gradually in some places, more rapidly in othe…
Brian Koffman pays tribute to Tom Henry as the family set up a memorial fund to continue his legacy of work for blood cancer patients
Today we share another tribute to Tom Henry, the CLL Pharmacist. This one comes from the founder of a USA blood cancer charity which Tom was involved …
Is COVID19 risk to blood cancer patients now at all time high?
Blood cancer patients made up 1 in 20 of all deaths caused by COVID19 between October and December 2021. This was twice as high a proportion of COVID1…
Rest in Peace. Tom Henry, The CLL Pharmacist and Patient
I am sorry to report the loss of one of our beloved authors here at blood cancer uncensored, and a regular attender of our weekly zoom call. Tom was a…
UK NHS admits priority PCR error. Some kits sent out to CLL patients missed off. Hundreds have missed out on treatment referrals
Until very recently the NHS was denying that there had been any problems with identifying those at highest risk of COVID19 in order to offer them prio…
Blood Cancer Uncensored in the iNews
In the last few days it has been our honour to be quoted twice in the iNews site which also exists as a newspaper. Many thanks to Paul Gallagher for w…
UK: PCR requirement for COVID-19 monoclonal antibodies and antivirals to be dropped but patients now being refused treatment for not being sick enough yet
Government backs down after patient community complaints reported by Blood Cancer Uncensored and iNews.co.uk but new barrier to life saving treatment …
UPDATE on UK Monoclonal antibody roll out – dangerous misinformation, denial and how to avoid deadly delay
I thought I would share an update on my previous post on navigating NHS chaos in regard to getting the monoclonal antibodies and antivirals. This is b…