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Getting to Tell Our Story and Why We Do What We Do

Andrew and I were recently honored to be interviewed by Bag It (bagitcancer.org) Executive Director Mindy Griffith​ about our journey as two-time blood cancer thriver and care partner. We touched on some of the toughest moments we experienced along the way, shared how we connected with terrific specialists and decided to have Andrew enter clinical trials, and explored our individual and shared passion for raising the patient voice. We tried to get across how important it is to take an active role in one’s own healthcare decisions, as well as have an active advocate and/or loved one by your side. Hope you enjoy! Listen here.

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Andrew and Esther Schorr of Patient Power
  • Andrew and Esther Schorr of Patient Power
  • Andrew Schorr, a medical journalist, has been living with myelofibrosis since 2011. His diagnosis followed being hospitalized for two blood clots in his legs. Andrew, working with his wife of 36 years, Esther, has been a patient education pioneer since 1984 and became a patient himself in 1996 when he was diagnosed with chronic lymphocytic leukemia. A clinical trial in 2000 led to a long leukemia remission and he has been treated for myelofibrosis since 2012. He leads a full life.

    Andrew and Esther founded Patient Power many years ago which produces and distributes videos, podcasts, and articles with doctors and patients in several specific cancers, including the two Andrew is living with.

    Follow Andrew on Twitter and Facebook.

    Esther Schorr is a skilled global project manager, and has worked with her spouse, Andrew, on patient and family education projects for more than 30 years. She has supported him in his cancer journey since his initial diagnosis in 1996. Esther is passionate about empowering "care partners" and is a strong believer that education leads to empowerment and better care. Esther focuses her work on building collaborative relationships with other patient-focused organizations.

    Follow Esther on Twitter and Facebook

    Andrew and Esther's Patient Power produces content on the following blood cancers: Acute Lymphoblastic Leukemia (ALL), Acute Myeloid Leukemia, Chronic Lymphocytic Leukemia (CLL/SLL), Chronic Myelogenous Leukemia, Hodgkin lymphoma, Mantle Cell Lymphoma, Multiple Myeloma, Myeloproliferative Neoplasms, Non-Hodgkin Lymphoma, and Waldenstrom Macroglobulinemia