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Remembering Tom Henry: Pharmacist, CLL Patient, Advocate, Spouse, Father, and Friend one year later

February 9th, 2022 is a day many of us involved in the friendly supportive weekly Zoom meetings will recall. The day we learned our CLL advocate champion friend Tom passed away. Let’s take a little time and remember Tom this week!

Come along with me as we reminisce!

I want you to feel empowered to advocate for your care, to question what seems wrong for you and, if necessary seek a second opinion or change providers to someone more willing to listen to you and be honest with you.‘ ~Tom Henry

For sh#5s and giggles (pun intended!), I looked up the recipe and found no ingredient that is a true food-drug interaction with acalabrutinib. I’d pin the culprit on what looks like an extremely high-fat content meal that the body would tell you to avoid whether you were on acalabrutinib or not. None of us in this group are 19 and capable of downing this. Another thought given that this is Rochester. If you eat this on December 20th you can hibernate all winter. It looks like a gazillion calories.

Tom’s medical take on the Rochester, NY Garbage Plate (8/17/20 from Facebook group):

Tom’s Credentials:

  • Works at CLL Society Inc.
  • President and Senior Consultant at Burlington Consulting Associates
  • Former Clinical Pharmacy Advisor at Lumere, Inc
  • Worked at Roswell Park Comprehensive Cancer Center
  • Former Chief Pharmacy Officer at Moffitt Cancer Center
  • Former Interim System Director of Pharmacy at Phoebe Putney Health System
  • Former Interim Director of Pharmacy at The University of Vermont Health Network – CVPH
  • Former Interim Director of Pharmacy at Waterbury Hospital
  • Former Transitional Leader at CompleteRx
  • Former Assistant Director of Pharmacy for Inpatient Services at M.I.H.S
  • Former Health Services Administrator = Executive Officer at United States Air Force
  • Former Interim Director of Pharmacy at Ima Consulting
  • Studied Management Information Systems at Winston-Salem State University
  • Studied Pharmacy at Albany College of Pharmacy and Health Sciences
Tom and his lovely wife Meli

As we remember Tom this week and honor his memory, please meditate on the words of this poem by Gwen Flowers.

I had my own notion of grief.

I thought it was the sad time

That followed the death of someone you love.

And you had to push through it

To get to the other side.

But I’m learning there is no other side.

There is no pushing through.

But rather,

There is absorption.

Adjustment.

Acceptance.

And grief is not something you complete,

But rather, you endure.

Grief is not a task to finish

And move on,

But an element of yourself , 

An alteration of your being.

A new way of seeing.

A new definition of self …

– Gwen Flowers –

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Lisa Wiest
  • Lisa Wiest
  • Blood cancer DX 1/5/17 (CLL). I am a nobody in the grand scheme. I can choose to be overwhelmed by my circumstances and all the "whys" and "what fors" or I can surrender. I choose surrender. By the grace of God through Jesus Christ, I have become a Child of God. Being on His team is the only sure thing in this life. This is my journey. A peek into my joys, fears, and passions. Come along with me and smell the flowers along the way. ~Lisa You can e-mail Lisa here.