Blood Cancer Uncensored in the iNews
In the last few days it has been our honour to be quoted twice in the iNews site which also exists as a newspaper. Many thanks to Paul Gallagher for w…
Search Results for: COVID
UPDATE on UK Monoclonal antibody roll out – dangerous misinformation, denial and how to avoid deadly delay
I thought I would share an update on my previous post on navigating NHS chaos in regard to getting the monoclonal antibodies and antivirals. This is b…
Video update on how to protect ourselves from omicron and get monoclonal antibodies
Video update on how to protect ourselves from omicron. If you are in the UK and havent got your priority PCR test at home yet call 119 and ask them to…
Information for our Providers to prove why Blood Cancer Patients with compromised immunity need Monoclonal Antibodies (United States patients)
This information was current as of its publication date. On Blood Cancer Uncensored Saturday, January 1, 2022 weekly meeting, we discussed the frustra…
The dreaded cancer diagnosis. My Non Hodgkins Lymphoma story
When I was diagnosed in 2013, I was devastated beyond anything I could’ve imagined. My future just disappeared. I didn’t feel well, I was losing weigh…
Persistence during a health pandemic and an unexpected blood cancer diagnosis–we are our best advocates when not feeling well!
Introducing blood cancer friend Tamsin Wheatcroft as she shares with us on this video how she learned of her CLL diagnosis. Join the blood cancer supp…
My Journey with CLL – from Sue Marshall #ThisIsBloodCancer
Blood Cancer Uncensored is pleased to support the international #thisisbloodcancer campaign. Please consider sharing your story of what blood cancer m…
Will Regeneron Become More Available in the USA as a Result of the Feds Stepping in on Distribution? #ThisIsBloodCancer
This information was current and correct as of the publish date. A friend sent me this article this morning about Florida and the other states who wer…
Not everything natural is good for you. Don’t reject modern medicines and hope supplements will heal you instead
Supplements vs Medicines Some people believe supplements are “natural” and therefore feel comfortable to take them whilst some of the same peoole are …
Regeneron monoclonal antibodies to the rescue? My Florida experience! #ThisIsBloodCancer
Lisa Wiest explains how having blood cancer made her eager to get injected with COVID19 monoclonal antibodies. Blood Cancer Uncensored is pleased to s…
How My ‘Half-Matched’ Sister Saved My Life: #ThisIsBloodCancer
Receiving a haplo-identical stem cell transplant for leukaemia Blood Cancer Uncensored is pleased to support the international #thisisbloodcancer camp…
The New Big Picture: #thisisbloodcancer
Piecing your life back together after a cancer diagnosis. Blood Cancer Uncensored is pleased to support the international #thisisbloodcancer campaign.…
September is Blood Cancer Awareness Month!
Who on this group does not know they have blood cancer? Or that their loved one has it? I realize there are folks on our group who are trying to get i…
Supplements and diets, blood tests showing high lymph count, safe sunscreen, what Coronavirus mutations mean, and best cell photo yet
#1 Get vitamins through what you eat! Here is a video that explains supplements and diet further:Patient Power - Diet and Supplements: What Do CLL Pat…
Out with the Old in with the New
Finding a way through new seasons I'm in a reflective mood. As I write it is a year to the day since we packed up our lives and relocated to the north…
Booster Shot Approved by FDA for Immunocompromised and Organ Transplant Americans…United Kingdom to begin boosters next month!
Here it is folks! I suggest you email or call your oncologist or hematologist to get a letter to prove why you need this booster and schedule the appo…
Dogs and Cats and Illnesses-Can my pet make me sick and in turn what can I give to my pet?
In today's uncertain climate, and on top of it all having blood cancer, you might be re-evaluating things you have always done, wondering if they are …
Lies about Vaccines and the Immune Deficient: Open Letter to UK Government, MHRA and APBI code of practice authority
The sad thing about this outrageous false Government communication scandal is that an opportunity was squandered to make the important point that immu…
10,000 Page views this month here at Blood Cancer Uncensored
Over just the last 30 days this site has received over 10,000 page views! This would not be possible, obviously, without you the readers. Especially t…
How to make sense of your blood test results – a CLL Society Webinar
Our friends and partners at the CLL Society has put on this excellent webinar to help you decode your blood results. Although it is targeted at CLL pa…
Take a Walk – Exercise may help fatigue in some of us
Our doctors tell us to get exercise. Our blood cancer friends tell us we need to do some walking. Well today, I went to our nearby state park where we…
THE most dangerous time for blood cancer patients as only 20% told vaccines may not work for them
The plight and high level of risk faced by the hundreds of thousands of people with blood cancer, and others who are immune compromised, has been scan…
DIY Antibody replacement – starting Subcutneous Ig instead of IVIg
For those of us with a compromised immune system, it is often advised to have infusions of Immunoglobulin to help fight infections. Three years ago wh…
It is NOW time to give monoclonal antibodies to ALL blood cancer patients who don’t respond to vaccines
This morning the RECOVERY trial reported crucial and encouraging results. It shows that the Regeneron man-made monoclonal antibodies against COVID19 s…
Starting on SCIG (the subcutaneous form of IVIG)
After over a year without my IvIG because it was deemed too risky for me to go into clinic (due to COVID19) finally it’s been possible to get on a hom…
Tips for Managing Neutropenia
Recently, questions were raised about diet when diagnosed with neutropenia. This summary is a result of the need for a user friendly guide for what to…
Treatment Diary Part 1 ….. and so it begins: Venetoclax and Obinituzimab
"So it looks like it's treatment time" was the message I sent to family and close friends following my video consultation with my consultant at the en…
Four Years from diagnosis: acceptance, ongoing challenges, looking better than I feel
There is no point me retelling the story of what happened in the nineteen days between getting sick with pneumonia and the 20 May 2017, the day my dia…
Happy One Year Anniversary Blood Cancer Uncensored!
Today is the date that marks one year of Blood Cancer Uncensored as a website and Facebook Group and Page. Last Saturday, we held a ceremony and prese…
Resources, resources, resources…
No - I'm not randomly blogging the titles of Beatles hits, (although not a bad idea...). Generally I wax lyrical about my experience of going through …
Just how bad is my immune system? How immunocompromised am I?
Blood tests which predict Immune System function and what they mean Individual medical advice is required to adapt these general comments to your clin…
Confessions of a Closet Sneezer
I admit it. The Covid pandemic has caused me to behave in ways I never would have thought possible. I snapped at a small child for sneezing near me! I…
Sporting Heroes
So today is World Cancer Day. I don't really know what that means or what it is supposed to achieve but I'm going to use the opportunity to tell you a…
Have I got the right Doctor for me? Advice on finding a real expert for a second opinion
Seeking a second opinion, when and why you might want to. Note that this is written largely from a UK perspective, and references specific UK legislat…
The Art of Being
Finding a way through Anxiety I have a Being Chair, also known as a reading/praying/napping/eating breakfast, watching-the-world-go-by chair. It's a g…
UK shielding not over yet for blood cancer patients
This is just a short article to make the point that although the headline is that shielding "ends" on March 31 the truth is we are far from safe yet a…
Grappling With The Fear
I feel like I've been beat up, pummeled, and bruised by this world. CLL was not the first thing that happened to me that threw me for a loop. I have h…
People Power
Finding a way through words I'm a people person. I remember my daughter once saying in a supermarket, "Mum's made a new friend!" after I'd spent the p…
Relationships and Blood Cancer
Jeremy Camp with first wife, Melissa, who died of cancer. See the movie, "I Still Believe"! &nbs…
The journey so far…
My "New Normal" really began in September 2017 when I walked, slightly dazed, out of my doctor's surgery at the end of a busy work day. Routine blood …
Letters to Mom
This is more or less written for me as I cope with the grief of the loss of my mom last month. I also wanted a way to remember my childhood, and was t…
Two more vaccines successful in clinical trials – working in UK, South African, and South American variants. Some data in immune compromised
Yesterday we had some more great news on the vaccine front. Since all the current vaccines work in a similar way because they use the original COVID19…
Misinformation and Blood Cancer
Blood cancer is so rare and divided into so many variants…
How well do vaccines work in blood cancer patients? The evidence for Chronic Lymphocytic Leukemia (CLL)
How well do vaccines work in patients with blood cancer? This study looked at treated and untreated patients with CLL to assess vaccine response rates.
Top Blood Cancer Uncensored Posts of 2020
Blood Cancer Uncensored was born during the first lockdown. Many of these posts outline reliable information about COVID19 in an easy to understand style.
Should Blood Cancer Patients take the COVD19 vaccine?
All I want for Christmas is a Covid19 Vaccine. Tomorrow the UK will become the first county to vaccinate members of its population with an authorised and fully-tested vaccine against Coronavirus. Considering most of us had not even heard of coronavirus a year ago this is a remarkable feat of modern science.
Finding Christmas
What a strange year 2020 has been! Prior to the beginning of this year, I believe many of us had plans, hopes, and resolutions which quickly faded as …
What can I do to live longer with blood cancer?
What can we do to improve our chances of living for many years after a blood cancer diagnosis? Covers accepting treatment, healthy living, and mental health.
UK government advises all blood cancer patients to stop going out to work or shops
I got an email from the UK government advising a return to a limited form of shielding today. In particular there is strong advice to avoid visiting a…
FCR Treatment Diary – an unexpected hospital admission
This is a continuation of a warts and all diary of my FCR treatment which happened two years ago and is now being published on the open web for the fi…
Diagnosing and Understanding Cancer related fatigue
A while back I found a great article on fatigue aimed at doctors but understandable to I would expect most of us who read this site. It’s all about ca…
Why “remission” can feel like a crushing blow
I found finishing chemo and being told I was in remission the most difficult time emotionally. It was worse than the initial diagnosis time. Worse than actually going through chemo. Worse than being in hospital with life threatening infections.
Riding A Bike
This is not a picture of me. But perhaps it could be. Recently, my husband bought used bikes for both of us. We are having such a wonderful summer, ev…
Interview with Non-Hodgkin’s Lymphoma Surivor Sharon Edwards
Told by doctors she was going to die, Sharon Edwards has survived ten years following a diagnosis of high grade Non-Hodgkin's Lymphoma. Her type of DLBL was aggressive, and needed aggressive treatment. Sharon shares her experiences with us in this interview.
Dealing with the threefold tyranny of a damaged immune system (Infections, Inflammation, Fatigue)
What can we do when cancer and chemo have led to a trail of destruction in our immune systems?
The View from Above
We enjoyed some well-deserved time off this week. It is a beautiful summer here in Western New York, and the weather has been beyond excellent. Some s…
Revolutionary Plug and Play Vaccine Platform
There is a phenomenal amount of work going on right now to find a vaccine for COVID-19. No fewer than 200 vaccine candidates are being looked at. Sixt…
Monoclonal antibodies for dummies
We recently did an antibodies for dummies post. You might well ask why "monoclonal" antibodies gets its own dummy feature write up. That would be like…
How a vaccine works
This is the next post in our Corona Hope series. If you have missed the previous articles you may want read them before continuing. The goal here is t…
Antibodies (immunoglobulins) for dummies
Wait, what do antibodies have to do with blood cancer? A lot as it turns out. Many blood cancers are of a type of lymphocyte called a b-cell. The prim…
Ibrutinib and BTK inhibitors for dummies
Ibrutinib is a relatively new and revolutionary drug that has changed the landscape for treating CLL . For many people, it might be the only leukemia …
Acute Myeloid Leukemia (AML) a new approach
EHA25Virtual: A Paradigm Shift for the Treatment of Newly Diagnosed Older Acute Myeloid Leukemia Patients THE HAGUE, Netherlands, June 13, 2020&n…
Holding on Too Tight
We all have them. Memories of traumatic events we wish would just "go away". In my field of work, I hear the phrase Post Traumatic Stress Disorder way…
“I’m new here” – where to start, how to donate or get help, use our search engine
What is blood cancer? Why Uncensored? Can my blood save a life? Where can I find some hope?
Video: Prof Peter Hillmen Global Expert explains CLL
Watch this friendly and easy to understand interview with one of the top specialist doctors in the World on this form of blood cancer. Prof Hillmen ex…
Matching Socks
I have many flaws. Perhaps some would call my problem a little touch of OCD. I spend a lot of time on something, trying to get it "just right", and th…
Viruses for dummies – corona edition
"Know yourself, know your enemy and you shall win a hundred battles without loss" was one of the tenets of Sun Tzu's Chinese military treatise, "The A…
What is Passive vaccination? Does Convalescent Plasma work? What is IVIG?
Passive Vaccination How can we help the immune system know how to fight the virus it has never seen before? You might have already read my post …
Could your blood save a life?
Three ways to save a life: 1. Donate blood. 2. Sign up to the Stem Cell Register. 3. Donate your Covid19 antibodies. #bloodcancer #kindnessofstrangers
Daily Blood Cancer Uncensored News
The latest blood cancer news from across the Internet. Updated daily. Also includes some COVID19 updates.…
Luekemia Clinical Update
There were 4461 abstracts on leukemia at ASCO2020! Here you can find a link to all of them, but we also try to share some of the key updates from this…
Facing your giant
There are things in life that have no apparent way out. All of the therapists on the planet, no matter how hard they try to solve the problems, cannot. We all need help. We need a Savior bigger than the giant.
Lymphoma Clinical Update
ASCO had 853 Lymphoma abstracts! We do have a link to all of them but here you will find some key highlights. This page also contains entry level, int…
Multiple Myeloma Clinical update
ASCO had 300 Multiple Myeloma abstracts! Fortunately we have found some easily understandable video updates. This page includes entry level to advance…
Shielders advised they are safe to go out once a day
Our lockdown has been extreme. So the news that from tomorrow we might be OK to think about going out for a walk once a day is in many ways welcome. A…
Chronic Lymphocytic Leukemia (CLL) clinical update
Welcome to this list of videos and helpful documents that you may want to work through if you would like an update on what is new in the world of trea…
Adrian’s First Walk in over Ten Weeks Shielding
So following yesterday’s change to the advice (and it was always only advice!) we decided to have a go at walking out. It was a bit scary. But we deci…
Anniversaries
Anniversaries! Why do we care so much about them? I'm not talking about the wedding kind, that's a no-brainer. I am thinking of the ones that signify …
How the immune system works
Blood cancer is a disease of the immune system. The very cells in the body that are meant to protect us from invaders have turned against us. And the …