USA representatives propose act to fund oral anticancer medicines the same way as IV chemotherapy
The USA currently has a funding system that treats IV cancer medications differently to oral ones. This can lead to huge differences in co-pays. In th…
blood cancer
Regeneron COVID Monoclonal antibodies finally approved in the UK. AZ antibodies prevented ALL severe infections and deaths!
It only took a year after the USA's FDA, but the UK's MHRA has finally approved the Regeneron monoclonal antibody cocktail! There is also great news a…
Supplements and diets, blood tests showing high lymph count, safe sunscreen, what Coronavirus mutations mean, and best cell photo yet
#1 Get vitamins through what you eat! Here is a video that explains supplements and diet further:Patient Power - Diet and Supplements: What Do CLL Pat…
Booster Shot Approved by FDA for Immunocompromised and Organ Transplant Americans…United Kingdom to begin boosters next month!
Here it is folks! I suggest you email or call your oncologist or hematologist to get a letter to prove why you need this booster and schedule the appo…
A Booster Covid Vaccine for the United States’ Immunocompromised Folks Coming Soon?
We were waiting on pins and needles to see if it would be approved by now, but we're not quite there yet. Hopefully by week's end. Studies are still b…
Dogs and Cats and Illnesses-Can my pet make me sick and in turn what can I give to my pet?
In today's uncertain climate, and on top of it all having blood cancer, you might be re-evaluating things you have always done, wondering if they are …
How to persuade your British GP to give your teenagers COVID-19 vaccine to protect you
This is another crucial update to our “warn, test, protect and treat” four point plan to stay alive as this virus continues to rage around us and gove…
USA blood cancer patients – Monoclonal antibodies now available if you have you been exposed to COVID19 or are you at high risk of exposure. When will the UK catch up?
Regular readers will be aware that we have been speaking passive immunity for COVID19 for over a year since the USA approved Regeneron's cocktail for …
Help on the horizon for Polycythemia Vera with rusfertide (PTG-300) as a possible option to reduce erythrocytosis in some patients?
This sounds like something we need to keep our finger on. Looks like a huge breakthrough and we will be looking forward to the 2021 EHA Annual Congres…
Blood Cancer Updates – IgG and other blood testing, antibodies and biotech news
These are Barbel's recent picks from things happening in blood cancer research or for things that will help you all to gain understanding of blood can…
Navigating the Covid-19 Vaccine Debates and Concerns of Efficacy for Blood Cancer Patients in the United States
UPDATE: The FDA has made a new decision July 31, 2021 on the use of REGENERON-COV in that some of us who are considered vulnerable to SARS-CoV-2 virus…
10,000 Page views this month here at Blood Cancer Uncensored
Over just the last 30 days this site has received over 10,000 page views! This would not be possible, obviously, without you the readers. Especially t…
How to make sense of your blood test results – a CLL Society Webinar
Our friends and partners at the CLL Society has put on this excellent webinar to help you decode your blood results. Although it is targeted at CLL pa…
Take a Walk – Exercise may help fatigue in some of us
Our doctors tell us to get exercise. Our blood cancer friends tell us we need to do some walking. Well today, I went to our nearby state park where we…
What is MRD and what significance does it have for me–CLL treatment reflections
Minimal Residual Disease or MRD is a common term used in CLL treatment and it can be tested from bone marrow and/or blood. It is often determined by a…
Chronic Myeloproliferative Neoplasms
In keeping with Blood Cancer Uncensored's overall goal of providing support for all blood cancer patients and support people, this is an attempt to pu…
Tips for Managing Neutropenia
Recently, questions were raised about diet when diagnosed with neutropenia. This summary is a result of the need for a user friendly guide for what to…
Happy One Year Anniversary Blood Cancer Uncensored!
Today is the date that marks one year of Blood Cancer Uncensored as a website and Facebook Group and Page. Last Saturday, we held a ceremony and prese…
Confessions of a Closet Sneezer
I admit it. The Covid pandemic has caused me to behave in ways I never would have thought possible. I snapped at a small child for sneezing near me! I…
Playing in the Poison Ivy
On a recent Zoom chat, I was asked to give my personal update, and all I could think of was the poison ivy I'd recently contracted. Here it is, MARCH …
Grappling With The Fear
I feel like I've been beat up, pummeled, and bruised by this world. CLL was not the first thing that happened to me that threw me for a loop. I have h…
Letters to Mom
This is more or less written for me as I cope with the grief of the loss of my mom last month. I also wanted a way to remember my childhood, and was t…
Perspective in the Midst of Troubles
I have never seen really, really extreme weather where I live. Yeah, I was around for the Blizzard of 1977 in Western New York, but I was a kid and it…
Healing is a Journey
I cut my finger a few days ago. I was riding my bike....no, I was doing archery....no, I was skydiving...no, I was fixing something in the house. All …
Riding A Bike
This is not a picture of me. But perhaps it could be. Recently, my husband bought used bikes for both of us. We are having such a wonderful summer, ev…
Catastrophic System Failure-Why the Support Group Concept is so Important
This life is so strange. We hopefully live life as healthy individuals at least until age 40 or age 50, but inevitably, these bodies break down. Then,…
Clonal evolution for dummies
In this Blood Cancer for Dummies article the focus is on clonal evolution which is the process by which cancer cells can acquire resistance to treatme…
The Fatal Sip
My friend texted me in a panic one morning. She was asking for prayer as she had drunk some rancid cream. She followed that text up with another that …
The Itch from Within-Hyper IgE Syndrome or something else?
This is a very serious post. I do not have any jokes about pets or condiments this time. As I felt sickness overcome me three times in the last 2 week…
The View from Above
We enjoyed some well-deserved time off this week. It is a beautiful summer here in Western New York, and the weather has been beyond excellent. Some s…
Facing the Son
I have a serious problem lately! I keep buying salad dressings! I do like to eat salad, but this is a lot of dressing. In the last week, I have bought…
Holding on Too Tight
We all have them. Memories of traumatic events we wish would just "go away". In my field of work, I hear the phrase Post Traumatic Stress Disorder way…