Six Bridges Foundation – A Passion for Kenya
John Kagwi and his Six Bridges Foundation--an amazing true story of second chances, hope, and making a colossal difference for cancer patients in Keny…
Lisa Wiest
I enjoy researching topics for Blood Cancer Uncensored. I have no medical background (except from personal experience with my blood cancer), but my goal is to point you to good, reliable resources. I am just one patient trying to lead other patients to helpful information based on the current climate. Check out my other posts under Consider the Lilies!
Market Research on Car T Therapy–a paid study for USA residents from Health Union
This opportunity was sent to us by our friends at Social Health Network Blood-Cancer.com is conducting a market research study on behalf of a sponsor,…
Paid Research Opportunity for UK residents on Social Isolation During the Covid-19 Pandemic
From our friends at Evolve Fieldwork, contact person is Gretel Urdambidelus Rodriguez. The purpose of this research is to better understand your opini…
A New Survey From Our Partners at Health Union for USA Blood Cancer Patients
Health Union is conducting the in America survey to better understand the impact and management of chronic health conditions. Survey responses also he…
Remembering Tom Henry: Pharmacist, CLL Patient, Advocate, Spouse, Father, and Friend one year later
February 9th, 2022 is a day many of us involved in the friendly supportive weekly Zoom meetings will recall. The day we learned our CLL advocate champ…
Watch and Wait, Watchful Waiting, W&W, and Watch and WORRY–what does it all mean?
There are now over 100 types of blood cancer recognized by the medical world with there being three main types: leukemia, lymphoma and myeloma. We kno…
Ask the Doc 2023 event with Doctor Mustafa Allergy/Immunology from Rochester Regional Health System
We were blessed to have Dr. Shahzad Mustafa again from Rochester Regional Head of Allergy and Immunology in Rochester, NY with us on January 21st. Alw…
Happy 2023! New Research opportunity with remuneration from our friends at Global Patients for CLL patients in USA
Hot off the press from our contact Miryam at Global Patients! At Global Patients, we are conducting a new study and would really value your opinion. T…
Follicular Lymphoma Paid Research Opportunity for USA offered by Ancora.ai
Participation involves two parts: Part 1: A video diary recorded over 3 days for 15 minutes per day ($100 compensation) Part 2: 1- hour virtual interv…
Acute Myeloid Leukemia paid USA study by Ancora.ai
Acute Myeloid Leukemia A few details: Participation involves two parts: Part 1: A video diary recorded over 3 days for 15 minutes per day ($100 …
Highlighting Fierce with Joy Blogger Susan Hartman during BCAM 2022
In honor of this year's Blood Cancer Awareness Month, I spoke with Susan Hartman about her cancer journey and how she has embraced her circumstances w…
What’s Happening During BCAM 2022
https://powerfulpatients.org/2022/08/18/blood-cancer-awareness-month-2022/#:~:text=September%201%2C%202022%20Congress%20designated%20September%20as%20…
Medical Care Resources for Countries of India and Turkey
We were recently contacted by a group called Clinic Spots who provides resources for individuals looking for doctors and medical care for various fiel…
Paid Research Opportunity for United Kingdom Residents from Evolve Fieldwork for Non-Hodgkin’s lymphoma patients
This time we have an opportunity from Evolve Fieldwork Limited Ltd. for a short (30-minute) survey for United Kingdom folks for 35 GBP compensation fo…
Paid Survey Offer from Global Patients for CLL/SLL Patients in USA
Thank you to Miryam González of Global Patients for sharing this paid research opportunity! Please click this link for this particular study (and send…
CLL / SLL Treatment Side Effects Roundtable Discussion with Friends
This is an excellent video presentation produced by fellow CLL patient Michele Nadeem-Baker of Patient Power for The Patient Story and also group expe…
A Personal Account of Massage and CLL
Please note: this is an opinion piece, not an endorsement for any particular type of activity (see editor's note, below). After two years of lethargy …
Blood Cancer Approved Summer Activities
As summer is here now and for some of us, this is the only time we can get out and enjoy better weather, I have compiled a list of safe activities for…
Paid Research Opportunity for United States Multiple Myeloma Patients from Ancora.ai
Ancora is looking for a diverse set of patients to participate in one or more levels of this three part study to understand the journey and to gain in…
The Passion Behind Heal Mary: A group that is taking cancer and treatment seriously and making medical trial options accessible worldwide
As spring is slowly spreading across the land, I always have hope that flowers and leaves will appear again after a long, dry winter. And it is emergi…
A Heartfelt Tribute to Blood Cancer Champion John Soper by Grandson Preston Norman
This post was shared by Christine Soper and Preston Norman. On January 19th, my grandad, "Poppy", John Wayne Soper, departed this life. He was an unbe…
The Evusheld Fourth Vaccine Conundrum
When I got my first dose of Evusheld on February 15th here in Western New York State, the talk about the 2nd booster was a very quiet buzz around here…
Reflections on Bactine and Skin Care from our friend Seymour Brown
One of the great benefits of our Blood Cancer Group and specifically the weekly Zoom chat is seeing members' personalities come out after getting to k…
Highlights on Multiple myeloma
This information was up to date at time of publishing. Encapsulated in this article are some good resources to which you can subscribe to get latest i…
My Evusheld Experience — I’m just an ordinary person!
I suppose you are wondering what I mean by that title. Well, I'll tell you! Two years ago I cannot even begin to describe how I was spending my time. …
Patient Advocate Foundation: Help is on the way for Cancer Patients in the United States
The information in this article was current as of the time of publication I had the opportunity to meet with Anita Reynolds, the Relationship Manager …
Information for our Providers to prove why Blood Cancer Patients with compromised immunity need Monoclonal Antibodies (United States patients)
This information was current as of its publication date. On Blood Cancer Uncensored Saturday, January 1, 2022 weekly meeting, we discussed the frustra…
Rowing My Boat with Grace
As I reflect on another year gone by and my second year working with Blood Cancer Uncensored, I want to draw some conclusions that for me, are persona…
Asciminib (Scemblix) STAMP Inhibitor for Certain Chronic Myeloid Leukemia Patients Approved by FDA
This information is current as of the publication date. This news is a result of individuals like you and I participating in a medical drug trial. Thi…
Persistence during a health pandemic and an unexpected blood cancer diagnosis–we are our best advocates when not feeling well!
Introducing blood cancer friend Tamsin Wheatcroft as she shares with us on this video how she learned of her CLL diagnosis. Join the blood cancer supp…
Introducing Blood Cancer Hero Jessica Kuhns and her remarkable son Jaden!
On October 13th, Blood Cancer Uncensored had the opportunity of interviewing Jessica, a positive, energizing lady and her accomplished son Jaden. Jess…
Compensated Study for a United States male only patient with acute myeloid leukemia for patient experience research-continue reading for specifics of study!
This information is current as of time of publication. Ancora.ai is looking for a male person of color (POC) diagnosed with acute myeloid leukemia to …
Car T therapy approved by FDA for adults with relapsed or refractory B-cell precursor acute lymphoblastic leukemia (ALL)
This information was current at the time of publishing. The advancement of Car T therapy for the blood cancers is definitely something to keep watchin…
Will Regeneron Become More Available in the USA as a Result of the Feds Stepping in on Distribution? #ThisIsBloodCancer
This information was current and correct as of the publish date. A friend sent me this article this morning about Florida and the other states who wer…
Regeneron monoclonal antibodies to the rescue? My Florida experience! #ThisIsBloodCancer
Lisa Wiest explains how having blood cancer made her eager to get injected with COVID19 monoclonal antibodies. Blood Cancer Uncensored is pleased to s…
Wear Red or Your favorite blood cancer shirt for BCAM!
This is the third event for the month. The challenge is to post a pic of you, or you with your family or friends all wearing a red shirt OR a blood ca…
Blood Cancer Uncensored Wants YOUR Blood Cancer Video or Written Story!
Blood Cancer Uncensored is pleased to support the International #thisisbloodcancer campaign. Please consider sharing your story of what blood cancer m…
September is Blood Cancer Awareness Month!
Who on this group does not know they have blood cancer? Or that their loved one has it? I realize there are folks on our group who are trying to get i…
Remdesivir or Regeneron–What is the Difference and can WE get these life saving Covid 19 treatments?
This is a simple post to explain the difference between these two drugs being used to combat Covid. Gilead Sciences' REMDESIVIR Anti-viral drug used i…
Booster Shot Approved by FDA for Immunocompromised and Organ Transplant Americans…United Kingdom to begin boosters next month!
Here it is folks! I suggest you email or call your oncologist or hematologist to get a letter to prove why you need this booster and schedule the appo…
A Booster Covid Vaccine for the United States’ Immunocompromised Folks Coming Soon?
We were waiting on pins and needles to see if it would be approved by now, but we're not quite there yet. Hopefully by week's end. Studies are still b…
Dogs and Cats and Illnesses-Can my pet make me sick and in turn what can I give to my pet?
In today's uncertain climate, and on top of it all having blood cancer, you might be re-evaluating things you have always done, wondering if they are …
Help on the horizon for Polycythemia Vera with rusfertide (PTG-300) as a possible option to reduce erythrocytosis in some patients?
This sounds like something we need to keep our finger on. Looks like a huge breakthrough and we will be looking forward to the 2021 EHA Annual Congres…
Navigating the Covid-19 Vaccine Debates and Concerns of Efficacy for Blood Cancer Patients in the United States
UPDATE: The FDA has made a new decision July 31, 2021 on the use of REGENERON-COV in that some of us who are considered vulnerable to SARS-CoV-2 virus…
Encouraging news with CAR T treatments in childhood cancers!
Here is some very encouraging news about CAR T therapy as an option for children with Acute Lymphocytic Leukemia (ALL) and also the multiple myelomas.…
Toxic Cancer Care? What a horrible prospect!
Here's an interesting seminar for the Americans on the high cost of medical care. Those with government provided health care need not apply! https://w…
Veggies for All–Summer Grilling!
This is one I think we can all enjoy. Perhaps even the kids if we put ranch dressing on it! I think the secret to tasty grilled veggies is in the mari…
Chronic Myeloproliferative Neoplasms
In keeping with Blood Cancer Uncensored's overall goal of providing support for all blood cancer patients and support people, this is an attempt to pu…
Tips for Managing Neutropenia
Recently, questions were raised about diet when diagnosed with neutropenia. This summary is a result of the need for a user friendly guide for what to…
Happy One Year Anniversary Blood Cancer Uncensored!
Today is the date that marks one year of Blood Cancer Uncensored as a website and Facebook Group and Page. Last Saturday, we held a ceremony and prese…